Information for Healthcare Professionals

National and local support for patients, carers, and professionals supporting patients

• Maggie’s Centres offering practical, emotional, and social support to anyone affected by cancer from diagnosis through to the end of life, or those in bereavement - nearest one located at the Churchill Hospital, Oxford  http://www.maggiescentres.org
• Macmillan Cancer Support resources for patients carers http://www.macmillan.org.uk/Home.aspx
• Marie Curie- a national charity which offers hands on nursing care during a terminal illness https://www.mariecurie.org.uk
• OxBEL - Oxfordshire Befriending at End of Life – a free service offering friendship, companionship, someone to talk toand helping people feel less alone. https://www.ageuk.org.uk/oxfordshire/our-services/befriending-for-life/
• Lawrence Home Nursing. A charity which offers hands on nursing care at the end of life, predominantly at night to those registered with Chipping Norton, Charlbury, Shipton-under-Wychwood, Hook Norton and Bloxham  GP surgeries http://www.lawrencehomenursing.org/blog
• Shipston Home Nursing – A charity which provides hands on nursing care for patients who are terminally ill and wish to remain at home in Shipston, Wellesbourne, Kineton, and surrounding areas. http://www.shipstonhomenursing.co.uk
• Palliative Care for People with Learning Disabilities - The PCPLD Network brings together service providers, people with a learning disability and carers working for the benefit of individuals with learning disabilities who have palliative care needs. Excellent resources. http://www.pcpld.org/

Bereavement

• SeeSaw – offers support for children (up to the age of 18) before and/or after the death of a sibling or parent http://www.seesaw.org.uk/
• Bereavement Advice Centre - A national helpline and information service offering information, support and advice on what to do after death including all the practical and legal issues and procedures that people may face. http://www.bereavementadvice.org/
• Cruse Bereavement Care – Cruse offers support to help those who are grieving. http://www.cruse.org.uk/ or http://www.oxfordcruse.co.uk
• The Samaritans 24 hour confidential and emotional support helpline. Tel number 01295 270000 or visit the website http://www.samaritans.org.uk/
• Government UK  - Bereavement useful inks Access useful links - https://www.gov.uk/browse/births-deaths-marriages/death Also ‘what to do after a death’ online guide https://www.gov.uk/after-a-death

Specific support for professionals

• Palliativedrugs.com founded in 2000 to promote and disseminate information about the use of drugs in palliative care. It also seeks to develop a sense of community for members of the website. There is a bulletin board to stimulate questions and debate and to share experience with colleagues. It is necessary to register for access for which there are eligibility criteria. www.palliativedrugs.com/index.html
• Macmillan Cancer Support - be.Macmillan for health and social care professionals https://be.macmillan.org.uk

National Bodies/Strategy

• Leadership Alliance for the Care of Dying People https://www.england.nhs.uk/ourwork/qual-clin-lead/lac/
• National End of Life Care Intelligence Network http://www.endoflifecare-intelligence.org.uk/home
• NHS Improving Quality Improvement  Programme-End of Life Care http://www.nhsiq.nhs.uk/improvement-programmes/long-term-conditions-and-integrated-care/end-of-life-care.aspx
• Help the Hospices. A UK charity for hospice care. A useful source of information http://www.hospiceuk.org
• The Gold Standards Framework - GSF was originally developed in 2000 and it is designed to optimise care in the community for all people nearing the end of life http://www.goldstandardsframework.org.uk/
• Dying Matters -Raising awareness of dying, death and bereavement in the UK. Useful articles, links ideas and a national Dying Matters awareness week in May each year. http://www.dyingmatters.org
• Ambitions for Palliative and End of Life Care - The website of the National Palliative and End of Life Care Partnership includes Ambitions for Palliative and End of Life Care which provides a national drive for local action 2015-2020. http://endoflifecareambitions.org.uk

Local Strategy

• Oxfordshire Clinical Commissioning Group End of Life Care http://www.oxfordshireccg.nhs.uk/your-health/end-of-life-care
• Northamptonshire Clinical Commissioning Group http://www.neneccg.nhs.uk/end-of-life