Information for Healthcare Professionals

National and local support for patients, carers, and professionals supporting patients

Maggie’s Centres offering practical, emotional, and social support to anyone affected by cancer from diagnosis through to the end of life, or those in bereavement - nearest one located at the Churchill Hospital, Oxford http://www.maggiescentres.org
Macmillan Cancer Support resources for patients carers http://www.macmillan.org.uk/Home.aspx
Marie Curie- a national charity which offers hands on nursing care during a terminal illness https://www.mariecurie.org.uk
OxBEL - Oxfordshire Befriending at End of Life – a free service offering friendship, companionship, someone to talk toand helping people feel less alone. https://www.ageuk.org.uk/oxfordshire/our-services/befriending-for-life/
Lawrence Home Nursing. A charity which offers hands on nursing care at the end of life, predominantly at night to those registered with Chipping Norton, Charlbury, Shipton-under-Wychwood, Hook Norton and Bloxham GP surgeries http://www.lawrencehomenursing.org/blog
Shipston Home Nursing – A charity which provides hands on nursing care for patients who are terminally ill and wish to remain at home in Shipston, Wellesbourne, Kineton, and surrounding areas. http://www.shipstonhomenursing.co.uk
Palliative Care for People with Learning Disabilities - The PCPLD Network brings together service providers, people with a learning disability and carers working for the benefit of individuals with learning disabilities who have palliative care needs. Excellent resources. http://www.pcpld.org/

Bereavement

SeeSaw – offers support for children (up to the age of 18) before and/or after the death of a sibling or parent http://www.seesaw.org.uk/
Bereavement Advice Centre - A national helpline and information service offering information, support and advice on what to do after death including all the practical and legal issues and procedures that people may face. http://www.bereavementadvice.org/
Cruse Bereavement Care – Cruse offers support to help those who are grieving. http://www.cruse.org.uk/ or http://www.oxfordcruse.co.uk
The Samaritans 24 hour confidential and emotional support helpline. Tel number 01295 270000 or visit the website http://www.samaritans.org.uk/
Government UK - Bereavement useful inks Access useful links - https://www.gov.uk/browse/births-deaths-marriages/death Also ‘what to do after a death’ online guide https://www.gov.uk/after-a-death

Specific support for professionals

Palliativedrugs.com founded in 2000 to promote and disseminate information about the use of drugs in palliative care. It also seeks to develop a sense of community for members of the website. There is a bulletin board to stimulate questions and debate and to share experience with colleagues. It is necessary to register for access for which there are eligibility criteria. www.palliativedrugs.com/index.html
Macmillan Cancer Support - be.Macmillan for health and social care professionals https://be.macmillan.org.uk

National Bodies/Strategy

Leadership Alliance for the Care of Dying People https://www.england.nhs.uk/ourwork/qual-clin-lead/lac/
National End of Life Care Intelligence Network http://www.endoflifecare-intelligence.org.uk/home
NHS Improving Quality Improvement Programme-End of Life Care http://www.nhsiq.nhs.uk/improvement-programmes/long-term-conditions-and-integrated-care/end-of-life-care.aspx
Help the Hospices. A UK charity for hospice care. A useful source of information http://www.hospiceuk.org
The Gold Standards Framework - GSF was originally developed in 2000 and it is designed to optimise care in the community for all people nearing the end of life http://www.goldstandardsframework.org.uk/
Dying Matters -Raising awareness of dying, death and bereavement in the UK. Useful articles, links ideas and a national Dying Matters awareness week in May each year. http://www.dyingmatters.org
Ambitions for Palliative and End of Life Care - The website of the National Palliative and End of Life Care Partnership includes Ambitions for Palliative and End of Life Care which provides a national drive for local action 2015-2020. http://endoflifecareambitions.org.uk

Local Strategy

Oxfordshire Clinical Commissioning Group End of Life Care http://www.oxfordshireccg.nhs.uk/your-health/end-of-life-care
Northamptonshire Clinical Commissioning Group http://www.neneccg.nhs.uk/end-of-life

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