Resource Centre

Information to support you, your family, friends and carers.

Here for you whenever you want information following the diagnosis of an incurable illness.

1 If you’ve been diagnosed with an incurable illness

• What is an incurable illness, what to expect when someone is dying?
• Symptom management and medicine.
• Coping with change and uncertainty at the end of life and talking about dying.

2 Finding out about hospice care

• What is hospice care?
• How can I get hospice care?

3 If you're caring for someone with an incurable illness

• Looking at the needs of a carer and who can support them.
• Benefits and allowances available for carers.
• Carers rights at work.

4 Financial support

• Overview of how to pay for end-of-life care.
• Benefits and allowances, including Attendance Allowance and Personal Independence Payment (PIP).
• Fast tracking and the complexities of local authority funding.

5 When planning ahead

• Planning for death, from financial planning to what to do with your digital assets.
• The issues around advance statements versus an advance decision to refuse treatment.
• Planning your own funeral, making a will and Lasting Power of Attorney.

6 With what to do when someone dies

• How to care for someone after they have died.
• Organising a funeral.
• How to look after yourself when someone dies.

7 If you’ve suffered a bereavement

• The nature and emotions of grief, how to look after yourself and how to tell others.
• Grief in children and teenagers.
• Supporting a friend or relative.
• Dealing with grief and bereavement at work.

8 Information for employers

• Supporting an employee when they are ill.
• How to support a bereaved employee.
• What an employer should do when a member of staff dies.